One month ago, I finally got my official diagnoses (Sjogren’s and “Lupus-like Syndromes). Since then I have been researching and reading everything I can find about these diseases. I’ve found wonderful blogs, forums, sites and support groups that have been a wealth of information, along with reading all the medical journal articles and medical sites.
With all this new information you’d think I would understand so much more about these diseases, which I guess, to some extent I do. I know that a lot of my symptoms fit into either AI (autoimmune) category. That so many symptoms can be related to either is quite confusing. Take extreme fatigue for instance, is that Sjogrens or Lupus? The joint pain? Gastrointestinal? Headaches? Sweats and fever? Swallowing pain? A lot can be either. Then we have to add in a few prior AI’s that I have, like Raynaud’s and Meneire’s and IBS. Now things get downright confusing.
Let’s now look at the medicines that are prescribed, like Plaquenil and Methotrexate and Prednisone. Hmmmm, more symptoms can be side effects from them. So, what did I do?
Yep, that’s right! I stuck my head in the sand with my butt in the air. This worked perfectly for a few days….okay, more like a few weeks, but then I knew I had to come back to reality and start dealing with this new life. Rather than taking each symptom and deal with it individually, I tried to clean house and lump as many as I could together. This just created a vicious circle which has left me right back to where I started. Tomorrow I go to see my Rheumatologist, so I have my list to take with me and hopefully I will get some answers. Until then butts up!